Roy Bailie

Roy Bailie's Fundraising Page

Fundraising for Action Duchenne
£5,080
raised of £3,000 target
by 76 supporters
Donations cannot currently be made to this page
Action Duchenne

Verified by JustGiving

RCN 1101971
We improve the lives of those with DMD to ensure those lives are no longer limited

Story

WE DID IT !!!!!!!
Janet & Roy have cycled round Lough Neagh
  - 140k - in the "Lap the Lough" challege on 30th August 2009.
                                                            -------------- Neagh Bother !!!!!! -------------- 
Along with several hundred other cyclists, we enjoyed a tail wind for much of the first two thirds up until the lunch stop at Shane's Castle. For the run home however it was heavy rain & pretty tough but we made it nevertheless and are proud owners of two Lap The Lough T-shirts. It was a great run.

It is not too late to donate to our cause and the Justgiving site will remain open so please consider donating what you can on this site or contact me : roy.bailie4@ntlworld.com

Duchenne Muscular Dystrophy (DMD) affects 1 in every 3,500 boys born.  Boys with DMD cannot produce dystrophin, a protein necessary for muscle strength and function. As a result, every skeletal muscle in the body deteriorates.
This continues until the boys are confined to powered wheelchairs. They have limited lifespans - usually living until their early twenties at best and quality of life deteriorates through their later years.

THERE IS NO CURE. - but there is now hope - several promising research projects are moving possible treatments to clinical trials hoping to have drugs available for boys that might lessen the progression of the disease. But it takes money to move this through the regulatory system and through to an authorised medicine. The most promising research is Exon Skipping and Utrophin upregulation.

The money raised by us will go towards funding these critical research projects aimed at identifying a cure (and effective treatments), for this life shattering condition. ACTION DUCHENNE - Cure Duchenne Muscular Dystrophy (http://www.actionduchenne.org/) is a registered charity and funds vital research.  We are a small charity run by the parents for the benefit of their children with  all monies but essential expenses, going into research.  

WE NEED YOUR HELP. WITHOUT A CURE THERE IS NO HOPE FOR ANY BOY WITH DMD LIKE ANDREW. 

Many thanks for your kindness in making this donation.

Please help. Please donate generously.

Please ask all your friends and family to do so too. Thank you very much. 
 
If you prefer to donate offline can send a cheque to the charity at ACTION DUCHENNE Epicentre 41 West Street London E11 4LJ
If you would like to create your own Just Giving page to benefit Action Duchenne, just follow the instructions on the Just Giving website - it's quite easy - and let me know that you have done so.
If you haven't already, please visit ActionDuchenne.org for more information about the charity and about progress being made. 
Donating through Justgiving is quick, easy and totally secure. It's also the most efficient way to sponsor me: Action Duchenne gets your money faster and, if you're a UK taxpayer, Justgiving makes sure 25% in Gift Aid, plus a 3% supplement, are added to your donation. So please sponsor me now!

About the charity

Action Duchenne

Verified by JustGiving

RCN 1101971
We have a very clear vision: a world where people's lives are no longer limited by Duchenne muscular dystrophy.

Donation summary

Total raised
£5,080.00
+ £723.46 Gift Aid
Online donations
£2,655.00
Offline donations
£2,425.00

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