Christine Le Roux
Chrissy's Sponsored Silence 14/06/2015
Fundraising for Motor Neurone Disease Association
Story
Hey everyone!
So this month is MND Awareness Month and I have decided that 2015 is the year to do something about it.
Some of you may or may not know that back in 2013 my Dad, Ian Le Roux, started to notice several changes to his body which included constant muscle spasms, achey joints and severe cramps. After much stress, many tests and home research he was given the news that we all suspected, but didn't want to hear - a diagnosis of the most common type of Motor Neurone Disease, Amyotrophic Lateral Sclerosis (ALS).
MND is a rapidly progressive disease that attacks and destroys the muscle in the body, meaning that life expectancy is usually between 2-5 years from the onset of symptoms. Fortunately for us, our lovely Dad has fought his way through the last two years with the most amazing strength and support from the MND Association.
For a man who was very active, worked as an engineer, spent his younger days surfing the waves, swimming in Gala's and kicking the crap out of his rival Rugby teams, these last two years have proved difficult, as he has gradually lost the ability to use his hands, arms and legs. Although he is still able to joke around with us all, ask for the ice cream treats in the freezer and talk about good memories, he is starting to experience some difficulty with the muscles in his throat.
Like many MND patience, eventually, he may not be able to speak at all and the prospect of this for our family, especially Dad, is a daunting one. As a whole, the ability to speak is taken for granted every day because it is something we as humans have been blessed with since birth - easy, personal communication - until its taken away from you.
SO, the plan now is to make more and more awareness about Motor Neurone Disease and its very real impact on patients and their families.
My Dad is one of my biggest influences, so this year I am committing myself to silence - believe it or not, a word that my family and friends would not generally use to describe me!
On 14-06-2015 I will be doing a Sponsored Silence for 24 Hours in the hope that silence will speak more than words.
I hope that this minuscule 24 hours will raise even a little bit of awareness and respect for those who do not have a voice due to this debilitating disease.
Thank you all so much for your support.
Appreciate, live, love & donate!
Chrissy x
So this month is MND Awareness Month and I have decided that 2015 is the year to do something about it.
Some of you may or may not know that back in 2013 my Dad, Ian Le Roux, started to notice several changes to his body which included constant muscle spasms, achey joints and severe cramps. After much stress, many tests and home research he was given the news that we all suspected, but didn't want to hear - a diagnosis of the most common type of Motor Neurone Disease, Amyotrophic Lateral Sclerosis (ALS).
MND is a rapidly progressive disease that attacks and destroys the muscle in the body, meaning that life expectancy is usually between 2-5 years from the onset of symptoms. Fortunately for us, our lovely Dad has fought his way through the last two years with the most amazing strength and support from the MND Association.
For a man who was very active, worked as an engineer, spent his younger days surfing the waves, swimming in Gala's and kicking the crap out of his rival Rugby teams, these last two years have proved difficult, as he has gradually lost the ability to use his hands, arms and legs. Although he is still able to joke around with us all, ask for the ice cream treats in the freezer and talk about good memories, he is starting to experience some difficulty with the muscles in his throat.
Like many MND patience, eventually, he may not be able to speak at all and the prospect of this for our family, especially Dad, is a daunting one. As a whole, the ability to speak is taken for granted every day because it is something we as humans have been blessed with since birth - easy, personal communication - until its taken away from you.
SO, the plan now is to make more and more awareness about Motor Neurone Disease and its very real impact on patients and their families.
My Dad is one of my biggest influences, so this year I am committing myself to silence - believe it or not, a word that my family and friends would not generally use to describe me!
On 14-06-2015 I will be doing a Sponsored Silence for 24 Hours in the hope that silence will speak more than words.
I hope that this minuscule 24 hours will raise even a little bit of awareness and respect for those who do not have a voice due to this debilitating disease.
Thank you all so much for your support.
Appreciate, live, love & donate!
Chrissy x