We are heartbroken to share the loss of our husband, father, grandfather, great grandfather and friend, Bill Boon, a kind, funny, and happy man who passed away recently. Bill was diagnosed a couple of years ago with VEXAS syndrome, a newly identified and rare autoinflammatory condition.

VEXAS (Vacuoles, E1 enzyme, X-linked, Autoinflammatory, Somatic) syndrome is a serious, progressive disorder that affects the body’s immune system, causing painful inflammation, fatigue, and life-limiting complications. Because it was only discovered in recent years, research is still in its early stages — and support for patients is extremely limited.

We have chosen to support RACC (Rare Autoinflammatory Conditions Community). A small but vital charity dedicated to supporting individuals and families affected by conditions like VEXAS, and funding much-needed research into these rare diseases. Their work is a lifeline for patients navigating uncertainty and isolation.

Every donation, no matter the size, will help RACC continue their mission:

- Advancing research into conditions like VEXAS

-Supporting patients and families through diagnosis and beyond

- Raising awareness of rare autoinflammatory diseases among doctors and the public

Please join us in celebrating Bill’s life by making a contribution in his memory. Your kindness will help others facing similar battles and bring hope to a growing community still waiting for answers.

Thank you so much for your support.