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Children worldwide face a daily battle with a rare genetic disorder you've probably never heard of: CRELD1-related disorder - otherwise known as Jeffries-Lakhani Neurodevelopmental Syndrome, or JELANS.

This newly discovered condition can cause a range of neurodevelopmental challenges, from difficulties with motor skills to severe intellectual disabilities and uncontrollable seizures. There is no known cure.

Our Goal:

CRELD1 Warriors has partnered with Dr. Felix Chan from the University of Birmingham to kick-start pioneering research into CRELD1.

We're cycling from London to Brighton to raise vital funds to collect skin biopsies and ignite the search for treatments that can change the lives of our CRELD1 children battling this rare disease.

Your Impact:

Your generous donation will directly support this groundbreaking research, offering hope and a brighter future for our CRELD1 Warrior family.

Together, we can fight for all those affected by CRELD1.

Thank you for your compassion and support. For more information about CRELD1 Warriors, please visit www.creld1.com.