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Team Daisy Dot Royal Parks Half Marathon

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Raising money for Reverse Rett
In memory of Daisy

Royal Parks Half Marathon 2024 · 13 October 2024 ·

Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Story

Our beautiful, wonderful Daisy died in April, aged just 9 years old.

Daisy was diagnosed with Rett Syndrome at the age of 2 and spent much of her life in and out of hospital due to the severe and complex health conditions that Rett Syndrome caused.

Myself, Dave and a team of friends will be running Royal Parks Half Marathon on October 13th to raise money for Reverse Rett in Daisy’s memory.

We hope that one day soon there will be better understanding and treatments for Rett Syndrome that will mean other children and families don’t have to go through what Daisy and our family did.

This one is for you Daisy - we miss you so much ❤️

Tribute members (6)

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Donation summary

Total
£5,078.49
+ £1,221.75 Gift Aid
Online
£5,078.49

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