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Team Jack

Team photo

Thanks for visiting our team fundraising page.

Our beautiful son, Jack William Dorrington was born 25th May 2017.  On the 12th July 2017 our world was torn apart when Jack was diagnosed with SMA Type 1, an incurable and fatal genetic disease.  Unbeknown to Chris and I, we were both carriers of a defective gene that causes SMA.

SMA is the leading genetic killer of infants and toddlers, yet awareness of this disease is surprisingly low, we certainly had never heard of it before.

Our goal now is to enjoy every last minute we still have left with Jack but to also help raise as much money and awareness to help raise as much money and awareness to help beat and cure this cruel disease.

SMA is currently incurable

1 in every 6000 births is affected by SMA

1 in every 40 people is a carrier of the defective gene that causes SMA

The child of two carriers has a 1 in 4 chance of developing SMA.

UPDATE

Jack sadly passed away on 28th August 2017. Thank you to everyone for their donations, kind words and support over this devastating time xxx

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Raised: 701%
 

Team target: £3,650.00

Raised so far: £25,590.40

Team members

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Member photo Name Fundraising progress Raised so far
Fundraiser icon

James Dorrington

JWD Invitational page

57 donations

999%

£4,997.05

Fundraiser icon

James Dorrington

James's page

103 donations

159%

£4,773.84

Fundraiser icon

Jayne Davies

Team Jack's SMA Awareness Sponsored Charity Walk

127 donations

0%

£2,847.50

Fundraiser icon

Nicola Copeland

Quiz nights

16 donations

850%

£1,276.00

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Sarah Dorrington

Jack's Christening

16 donations

0%

£1,045.00

Fundraiser icon

Sarah Dorrington

SMA Trust Donations

226 donations

0%

£10,651.01

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