Jeremy Hoar

The Pink Chicks' Fundraising Page

Fundraising for Caring Matters Now
£8,495
raised of £10,000 target
by 121 supporters
Donations cannot currently be made to this page
Participants: Susanna Hoar and Clare Twigger-Ross
Caring Matters Now

Verified by JustGiving

RCN 1192670
We provide support to those affected by CMN

Story

Thank you so much for visiting our fundraising page

*** RACE 10 Great South Run Sunday October 24th

***STOP PRESS RACE 9 Richmond River run 10k September 4th - running with Rachel and Fiona ( or possibly a little behind them!) Only one more to go

***STOP PRESS RACE 8  Race For Life 5k Guildford 20th June - best race so far, running with friends - Caroline and Louise and of course Clares daughter Alice! - 32minutes. Very pleased with ourselves. We've come a long way!

*** STOP PRESS RACE 7 - 10k Regents Park 1st May. Our favourite run so far. Very flat and just beautiful we are going to do this one again.

*** STOP PRESS RACE 6 - 10k Richmond Park Sunday 7th March- Very cold but beautiful along the river  - Great way to kick start the runs for 2010

*** WE ARE HALF WAY THERE - 5 RACES DONE AND 5K RAISED INCLUDING GIFT AID. A BIG THANKYOU AND A VERY HAPPY CHRISTMAS TO ALL YOU PINK CHICK SUPPORTERS OUT THERE.

*** STOP PRESS RACE 5 SANTA DASH 5K in Marlow Sunday 6th December - Susanna not well so instead we ran in STOKE PARK Sunday 13th December still in our Santa outfits. Photos coming soon...

*** STOP PRESS  WE DID IT  - THE BIG ONE - the GREAT SOUTH RUN on Sun. 25th October  - 10 miles in 2 hrs 1min  HURRAH!***

*** STOP PRESS We completed our 3rd run on September 27th, the Hampton Court 10k in 1hr 10mins - we are getting faster, if only very slightly! ***

*** STOP PRESS Charity screening of "Sunshine Cleaning" at Guildford Odeon raised over £800 *** 

In a mad moment we have decided to make a difference by completing 10 runs and raising £10,000 for the charity Caring Matters Now over the next 12 months starting June 6th with a 5k race. We thought we should start off gently!

Elspeth, my daughter and Clare's goddaughter was born with Congenital Melnocytic Naevus (CMN's). They are birthmarks and regarded as a type of benign tumour. They cover 25% of Elspeth's body and of other children sometimes as much as 80%.

Only 1 in 20,000 babies each year are born with this condition. As a result maternity staff are unlikely to have heard of it . We left hospital with Elspeth with very little advice, waiting for an appointment at Great Ormond Street for the specialist there to tell us if her CMN's were benign. We experienced a rollercoaster of emotions during the first few weeks after her birth. We worried we may lose her, struggled with our own and others' reactions to her marks and the uncertainty of her future. At the same time we were blessed with a new addition to our family, a beautiful baby girl, and a sister for William and Martha.

We now know that her CMN's are benign and will hopefully remain so. We continue to be supported by GOSH with 6 monthly check ups.

Elspeth is now 4 and is a determined and confident child who takes a great delight in life! She is rather proud of her CMNs and calls them her "special  Elspie marks".


Hopefully one day there will be treatment available as a result of  research into Congenital Melanocytic Naevus (CMN)  carried out at Great Ormond Street. It is however paid for entirely by the money raised by Caring Matters Now. They need to raise £30,000 p.a  to continue with this vital research. So every penny raised through this website will count.

So far we have booked on to the following races:
6 June    Stoke Park Guildford  5k
12 July    Hyde Park   10k - now completed - 1hr 13mins
27 Sept  Hampton Court  10k - now completed 1hr 10mins
25 Oct    Great South Run 10 miles
13 Dec   Stoke Park Guildford Santa Dash
7 March  Richmond Park 10k
18 April   Newnham Classic 10k
1 May      Regents Park 10k
20 June  Race For Life

Where other charities organise the race we will be making a contribution to their cause.

We'll be organising other events too. Watch this space...

We will be so grateful for any contribution you feel able to make. And if you would like to do more than donating your hard earned cash it would be rather fantastic if you joined us for 1 or all?!! of our races. You too could become a pink chick.

For more info see www.caringmattersnow.co.uk. You can contact us by email : Susanna at j.hoar@ntlworld.com or Clare at Clare.twigger-ross@ntlworld.com

Donating through Justgiving is quick, easy and totally secure. It’s also the most efficient way to sponsor us: Caring Matters Now gets your money faster and, if you’re a UK taxpayer, Justgiving makes sure 25% in Gift Aid, plus a 3% supplement, are added to your donation.

 Thank you again and lots of love from
Susanna and Clare (The Pink Chicks)

About the charity

Caring Matters Now

Verified by JustGiving

RCN 1192670
Caring Matters Now is the only UK charity supporting children and adults affected by Congenital Melanocytic Naevi (CMN) - a genetic condition, consisting of dark brown hairy birthmarks covering up to 80% of the body. The condition has many expressions, some of which can lead to medical complexities

Donation summary

Total raised
£8,494.08
+ £816.40 Gift Aid
Online donations
£3,981.76
Offline donations
£4,512.32

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