Pedal For a Purpose: Supporting Action for BPAN

Organised by Action for BPAN

Cycling From London to Brighton on the September the 14th for Action for BPAN — funding research, rising awareness and supporting families battling this rare devastated rare disease. Because every child deserves a chance at life.

London to Brighton Cycle Ride 2025 · 14 September 2025 ·

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Action for BPAN was created by two mothers who's daughters have been diagnosed with this rare Neuro-degenerative condition. As the UK's first charity for BPAN we want to fund the vital research for a cure or treatment and give a voice to this rare community of wonderful children and parents.

Story

We are taking on the London to Brighton Bike Ride to support Action for BPAN, the UK's first charity dedicated to funding research for BPAN (Beta-Propeller Protein-Associated Neurodegeneration).

BPAN is a rare, life-limiting genetic condition that causes progressive neurological decline, seizures, early onset dementia and movement disorders such as Parkinson's and Dystonia. BPAN is a cruel condition that takes so much away from these children and is heartbreaking for families to go through. Action for BPAN was created by families to help fund the groundbreaking research into treatments and cures, support families, and raise awareness of this devastating disorder.

Every mile we cycle is a step closer to life-changing treatments and a brighter future for all children living with BPAN.

Please support us on this journey — together, we can turn hope into action!

You can find out more about Action for BPAN and read some about some of the amazing children and families we support on our website. https://www.actionforbpan.co.uk/

Donation summary

Total
£6,845.00
+ £1,381.25 Gift Aid
Online
£6,845.00
Offline
£0.00
Direct
£300.00
Fundraisers
£6,545.00

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