Becker Muscular Dystrophy (BMD) is a rare condition, affecting approximately just 2,400 people in the UK. It is a genetic muscle wasting condition which firstly affects mobility, then the heart and respiratory muscles, causing early death.

Our son Hugo was diagnosed with BMD in 2016 at the age of three. When we were told there is no cure it was devastating. One of the greatest challenges of BMD is that the progression and severity can vary significantly, meaning we have no definite time frame for Hugo's future, which can be very challenging. We feel the best thing we can do is focus on helping to fund research.

All the proceeds from Hugo's Research Fund will go to MDUK to fund research into BMD. This will hopefully lead to a greater understanding of the condition and, most importantly, lead us closer to a cure. We also hope the Fund can help raise awareness of Muscular Dystrophy in our local Jersey community.

Thank you for your support