Jensen was diagnosed with Duchenne muscular dystrophy on 17th June 2019, 3 months before his 6th birthday.

Getting a diagnosis was challenging. Apart from Jensen’s difficulty to run and jump, his only other symptoms were some pain and tiredness. It took numerous visits to the doctors and physio before his muscle wastage blood test was taken, however nothing prepared us for the heartbreaking news of his condition and the degenerative path his life was to take.

Jensen has been through a lot. In December 2019, thanks to Duchenne UK, he embarked on a 12-month medical trial for a steroid alternative drug called Vamorolone. Taking part in a clinical trial is no small endeavour for anyone, and Jensen did us really proud through the numerous hospital visits and tests throughout this process. Despite this, Jensen took his last ever steps during his trial sign off in December 2020 and has been non-ambulant ever since.

In September 2023, Jensen underwent tendon release surgery on his ankles. He made this choice himself and we will always be proud of his bravery in making this decision.

Despite his battles, he has remained a very cheeky and very happy boy. He has many interests, including Pokemon, gaming, all things animals and most recently taken up wheelchair football with AFC Bournemouth.

Mission Jensen aims to support Duchenne UK by bringing our story to those we know and investing the funds we raise into research and trials that will have a direct impact on the future of Jensen and those with Duchenne.

Mission Jensen - on a Mission to End Duchenne."