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MPS Society Awareness Week 2026

Our MPS Awareness Week runs from 11-17 May this year and we're encouraging everyone to wear blue, share our posts and donate or fundraise to help us continue to support those with MPS conditions.

MPS Society Awareness Week 2026 · 11 May 2026 to 17 May 2026 ·

Closes 31/12/2026

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The MPS Society provides specialist support to children, adults and families in the UK who are affected by MPS, Fabry and related lysosomal storage diseases and we fund research into treatment and therapies. These diseases are rare, genetic, life-limiting conditions with no cure.

Story

International MPS Awareness Day on 15 May is an important date to highlight the rare and often unknown MPS conditions. Each year we celebrate for a whole week by raising awareness of these conditions and sharing the stories of those affected. This year our MPS Awareness Week runs from 11-17 May.

This year, we are celebrating the strength and impact of coming together. When families, researchers, clinicians and industry join forces, they have the power to drive real and meaningful change.

If you'd like to get involved, please wear our charity colour blue, share our social posts, make a donation or organise a fundraising event. We're here to help you with whatever you would like to do! For more info and ideas, check out this section of our website.

You can also email us at fundraising@mpssociety.org.uk

Thank you for helping to give children and families the chance to live a rare life better.

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