Story
I'm raising awareness and funds for the MPS Society. This small charity supports families affected by rare, genetic conditions.
The MPS society provides support to families affected by rare genetic conditions. They raise money & awareness of these conditions through fundraising, information, research & support
MPS conditions are a family of rare, life limiting lysosomal storage disorders that can affect both children & adults.
Just recently we lost a dear friend - Oliver to MPS hunters syndrome, In his mid twenties.The MPS is a small charity but is currently supporting over 1800 families who are living with this condition & we want to raise awareness & funds to support them.
