£36,252.72

raised by 279 supporters
Solving Kids' Cancer

Ollie Sweeney's Journey

Ollie's family is raising funds in case Ollie needs to access further treatment not available on the NHS to either keep the cancer from returning or clear the disease if his frontline treatment doesnt go to plan.
Charity Registration No: 1135601

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Story

Ollie celebrated his 3rd birthday in February this year. He is a happy and cheeky chilled out boy who loves fire engines, cars, planes and especially trains. Hes a big fan of PJ Mask, Paw Patrol, Buzz Lightyear and Fireman Sam and is known for giving out high fives!

Just before his 2nd birthday little Ollie was diagnosed with high-risk neuroblastoma. Since then he has undergone invasive and intensive treatment, including lots of rounds of chemotherapy, high-dose chemotherapy, 12 hours of surgery, stem cell harvest, radiotherapy and numerous side effects from these treatments. He has endured so many blood transfusions, platelet transfusions, painkillers, antibiotics and so much more. Throughout all of the treatment, Ollie has continued to smile and be happy to play with his toys. He's now receiving immunotherapy treatment and his halfway scans show no evidence of disease (NED).

Ollie's family hope his next round of scans completed at the end of the immunotherapy treatment will confirm NED and he is declared as in remission, but, there is still a chance he will relapse in the future.

Ollies mum and dad, Lucy and Gary, are determined to do everything they can to give him the best possible chance of beating this awful disease. They are looking to raise £241,000 by April 2020 so Ollie can receive a clinical trial vaccine in New York that aims to keep the cancer from coming back.

Diagnosis

In late November 2018, Ollies parents started to notice a change in him.

He became a very sad child. He was getting very clingy and unsociable completely the opposite to how he usually is, say Gary and Lucy. He stopped enjoying the things he loved doing like going to nursery and swimming. He stopped eating and only wanted to sit watching TV.

They noticed his skin becoming translucent and his veins being very visible. His stomach was also very swollen and his belly button bulged out. He was very irritable when it came to changing his nappy.

They took Ollie to the doctors on many occasions with high temperatures and sometimes sickness. They thought it was just a viral infection and it would work itself out. But after several visits, Gary and Lucy insisted on seeing their local GP who immediately referred Ollie to the Paediatric ward at Luton and Dunstable hospital.

Blood tests were taken which found Ollie to be anaemic. But just before he was to be discharged, a doctor asked to feel Ollies stomach. An emergency ultrasound was called for and a tumour was found in his abdomen.

Hearing the word 'neuroblastoma '

Ollie was immediately transferred to Addenbrookes hospital. After several days of testing and scans it was finally confirmed on January 9th 2019 that Ollie had stage 4 high-risk neuroblastoma.

He had a tumour in his abdomen around one of his kidneys and another tumour growing behind his right eye, which was pushing on his eyeball. The cancer had also spread to his bone marrow, say Gary and Lucy.

We cant even describe the feelings we felt when we were told. It was quite simply the worst day of our lives. No one can prepare you for it, but we had to accept it and be strong for Ollie. We decided that no one was allowed to cry around him if we felt ourselves feeling emotional we left the room for a moment and just try to be positive around him.

Starting treatment immediately

Ollie started chemotherapy the day after his diagnosis and then had surgery and more intensive chemotherapy, which involved being in isolation for weeks.

We already noticed the difference in him. It was like we had our old Ollie back. Running around, playing with his cars and wanting to interact with other children once again.

Ollie then had radiotherapy before starting several months of immunotherapy - due to finish in April/May.

Fundraising campaign

Ollies mum and dad, Lucy and Gary, are determined to do everything they can to give him the best possible chance of beating high-risk neuroblastoma. They need to raise £241,000 by April 2020 so Ollie can receive the Bivalent Vaccine clinical trial at the Memorial Sloan Kettering Cancer Center in New York that aims to keep the cancer from coming back.

Please help give Ollie the best chance of beating this devastating disease.

How you can help

There are many ways you can help Ollie: by making a personal donation; by sharing his story on Facebook, holding a fundraising event; getting sponsored to take on a challenge.

To donate by text, send OLLIESWEENEY followed by any whole amount up to £20 to 70085. This will cost your donation plus your standard network charge. It wont matter if you leave a space before the number, if you include a £ sign or whether you use upper or lower case.

If you'd like help supporting Ollie's campaign, please get in touch with the fundraising team on 0207 284 0800 and fundraising@solvingkidscancer.org.uk.

Photos

0

Fundraisers

54

user

Jane Healy

£1,850.71

raised by 28 supporters

0%
user

Lucy Sweeney

£1,658.40

raised by 26 supporters

0%
user

Steven Hunt

£1,650.00

raised by 40 supporters

0%
user

Chlo Short

£1,226.00

raised by 38 supporters

0%
user

tim palmer

£1,200.98

raised by 49 supporters

Supporters

225

Auntie Chris and Uncle Terry

8 days ago

In lieu of Valentine cards and flowers. Keep being strong, amazing and brave, Ollie. We are so proud of you and love you lots xxxx

£20.00

+ £5 Gift Aid

Lesley

13 days ago

Keep positive. God bless you.

£50.00

+ £12.5 Gift Aid

Thompsons Accountancy Services Ltd

1 month ago

You have been nominated by one of our members of staff to be the recipient of part of our 2019 Christmas Charity Fund. We are pleased to be able to send this donation in support of your cause.

£100.00

Anonymous

1 month ago

Thinking of you always Glenna x

Anonymous

1 month ago

Bless him

About the charity

Solving Kids' Cancer
Solving Kids' Cancer

Donations are paid into Solving Kids' Cancer’s general funds for our charitable activities. We help families affected by neuroblastoma through the provision of support and information; as well as investing in research and advocating for access to better treatment

Charity Registration No: 1135601

http://www.solvingkidscancer.org.uk

Donation summary

Total raised

£36,252.72

+ £6,670.77 Gift Aid

Direct Donations

£8,233.43

Donations via Fundraisers

£28,019.29

Offline donations

£0.00
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Ollie Sweeney's Journey

Solving Kids' Cancer