Story

Price Forbes is proud to support The Noah Jordan Foundation as our Charity of the Year 2026.

The Noah Jordan Foundation is a UK registered charity dedicated to funding research, raising awareness, and supporting families affected by rare paediatric mitochondrial diseases, for which there are currently no treatments or cure.

Mitochondrial disease prevents the body’s cells from producing the energy required for normal function. In children, this often leads to seizures, organ failure, developmental regression, and a life-limiting prognosis.

Tragically, this is what Noah experienced before he passed away. There are currently no treatments or cure, with care focused on symptom management and family support.

Colleagues across the business voted to support The Noah Jordan Foundation, recognising the opportunity to back a meaningful and under‑funded cause where our involvement can make a visible and lasting impact.

Supporting a smaller, emerging charity means our fundraising, events and engagement throughout the year will play a direct role in helping the foundation grow, fund research, and reach more families at a critical stage in its development.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

Learn more about Noah’s story and the impact of the charity below.

Baby Noah leaves a 'Mity' Legacy...

Our Son Noah Kenneth Ray Jordan was born on the 5th June 2023 at Treliske, The Royal Cornwall Hospital, Truro, the second Son of myself and my wife Natasha Jordan. He was a happy and healthy little boy; he was always smiling, laughing and loved playing with his big brother Freddie.

Noah was an otherwise healthy and happy infant up until 8 months of age, when he presented with symptoms of jaundice as a result of acute liver failure. Following admission to Treliske on the 18th February 2024, he was quickly transferred to the nearest paediatric specialist centre at Birmingham Children's Hospital where following neurological progression a diagnosis of a rare Mitochondrial disease was obtained, namely, Alpers-Huttenlocher Syndrome. Mitochondrial disease is believed to affect 1 in 5000 children.

The disease progressed quickly and Noah passed away one month following admission to hospital.

This awful disease, particularly prevalent in infants and young children is incredibly progressive attacking the liver and brain; causing liver failure and uncontrollable seizures, and unbelievably there is currently no treatment or cure.

Unfortunately, Noah was not well enough to be transferred back to a Hospice near his home in Cornwall and so spent his last days surrounded by his family at an incredible Paediatric Children’s Hospice in Berkshire called ‘Alexander Devine’ where he sadly passed away.

Noah died peacefully in our arms on the 19th March 2024.

Help us raise £100,000 to fund vital medical research towards treatments and a cure

We are seeking to raise an additional £100,000 to fund a second three year PhD in medical research into POLG related mitochondrial disease, the condition that took Noah’s life.

This new research will be conducted at the Mitochondrial Research Group at Newcastle University, under the guidance of the charity’s medical advisors, Professor Robert McFarland and Dr Laura Smith.

By supporting our campaign, you are helping to fund vital research aimed at advancing understanding, developing treatments, and ultimately finding a cure.

Noah's story in full (written) https://www.tnjf.org.uk/noah-s-story

Noah's story (video) https://www.instagram.com/reel/DATPcHBIKnD/?utm_source=ig_web_copy_link&igsh=MzRlODBiNWFlZA==

BBC News (Article): https://www.bbc.co.uk/news/articles/c4gdxr18nqlo

BBC News (Radio): https://www.instagram.com/reel/DBwfM3WOlaR/?utm_source=ig_web_copy_link&igsh=MzRlODBiNWFlZA==

BBC News (Television): https://www.instagram.com/reel/DBrTLzVu-tg/?utm_source=ig_web_copy_link&igsh=MzRlODBiNWFlZA==