The National Brain Appeal

Rare Dementia Support

Please donate now and help us provide support groups to people with rare forms of dementia FTD, fFTD, PCA, PPA, FAD and LBD and their families, friends and healthcare professionals.
£140,993
raised of £350,000 target
by 3284 supporters
RCN 290173

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Story

Thanks to all our fundraisers, we have reached our target for 2021-2022!

Help us to raise £350,000 for Rare Dementia Support in 2022-2023. The National Brain Appeal raises £350,000 per year to develop support, education and research for the seven rarer dementias supported by Rare Dementia Support (RDS).

Rare Dementia Support offers specialist social, emotional and practical support services for individuals living with, or affected by, a rare dementia diagnosis. The National Brain Appeal supports RDS vision for all individuals with, at risk of or supporting someone with one of these forms of dementia to have access to information, tailored support and guidance, and contact with others affected by similar conditions. Over 2,700 people are currently supported across the UK with around 1,000 attendees across all the meetings. There are seven types of rarer dementia supported by this service:

Frontotemporal dementia (FTD)

Posterior cortical atrophy (PCA)

Primary progressive aphasia (PPA)

Familial frontotemporal dementia (fFTD)

Familial Alzheimer's disease (fAD)

Dementia with Lewy Bodies (LBD)

Young Onset Alzheimer's Disease (YOAD)

For more information about these conditions and the support available, visit Rare Dementia Support. Services currently being offered include: large, national, diagnosis-specific support group meetings; carer-only meetings; small discussion groups; one-to-one support by email, phone and video call; a free legal advice service; community support; regional support groups; bereaved carer meetings and in partnership with Dementia UK, the support of the first RDS Admiral Nurse.

Two new support groups have recently been set up a Young Onset Alzheimer's Group and a Young Adult Children's group. RDS membership has grown more than 60% with 830 new members joining in 2020, 860 people attending online support groups and 45,171 visits to the website from 142 different countries a truly worldwide impact! This virtual centre is being developed alongside the physical centre which will be the worlds first Centre for Rare Dementias. Please visit our campaign for the centre here.

About the charity

There are 14.7million people – that’s more than one in six – in the UK living with a neurological condition. Here at the country's leading neurological centre, we’re passionate about supporting the hospital to help improve the lives of patients through treatment and research.

Donation summary

Total raised
£140,992.51
+ £24,370.09 Gift Aid
Online donations
£139,906.51
Offline donations
£0.00
Direct donations
£885.00
Donations via fundraisers
£140,107.51

* Charities pay a small fee for our service. Find out how much it is and what we do for it.