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Our campaign is now complete. 68 supporters helped us raise £1,558.00

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Closed 19/12/2023

Super Rare 2023 for PNH Support

Organised by PNH Support

Super Rare is a campaign where we are asking people to fundraise to help people affected by rare bone marrow conditions. The theme for 2023 is Stronger Together - because seven small charities are coming together to join the campaign

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Closed 19/12/2023

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We support patients living with Paroxysmal nocturnal haemoglobinuria (PNH), an ultra-rare bone marrow failure disease, and their families in England, Wales and Northern Ireland. No PNH patient is alone - all are represented and enabled to live to their full potential with PNH.

Story

The Super Rare Campaign is a fundraising campaign throughout February and March 2023 where we are asking people to fundraise to help people affected by rare bone marrow conditions.The theme for 2023 is Stronger Together - because for the first time, seven small charities are coming together to join the campaign, to help anyone diagnosed with a super rare bone marrow condition. The seven small but mighty organisations in this partnership are: The Aplastic Anaemia Trust, CAN (Congenital Anaemia Network), DBA UK, DC Action, Fanconi Hope, PNH Support and SDS UK. Be creative, be daring, or just be silly with your fundraising. Set yourself a challenge to complete in February and March 2023 to raise money and awareness for your chosen charity. Raise £200 before the end of March and receive a Super Rare T-shirt.

Donation summary

Total
£1,558.00
+ £227.50 Gift Aid
Online
£1,558.00
Offline
£0.00
Direct
£10.00
Fundraisers
£1,548.00

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