£78,094
raised by 558 supporters
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Jessica Lewis avatar
Jessica Lewis

The Anna Lewis Brighter Future Fund

raising money for Great Ormond Street Hospital Children's Charity because we want to help find a cure for Alpers' Disease.

£78,094
raised by 558 supporters
Donate

Great Ormond Street Hospital Children's Charity

We provide world-class paediatric care to help give hope to seriously ill children

Charity Registration No. 1160024

Story

In memory of Anna Lucy Mary Lewis, 9th February 2011 - 1st April 2012.

( To see all pages raising money for The Anna Lewis Brighter Future Fund and our running total please visit www.justgiving.com/remember/26325/Anna-Lewis )

Thank you for visiting this Brighter Future Fund page in memory of our wonderful daughter, Anna.

Anna was a healthy, happy baby before she became ill on 19 January 2012. She had a seizure out of the blue which didn't stop, and she was taken into intensive care.  No one knew what the matter was and she underwent so many tests.  She was so brave - always smiling at the Doctors and Nurses and charming everyone who met her with her beautiful smile and spikey hair!  On 16 March, 8 weeks after that first seizure, Anna was diagnosed at GOSH with Alpers' Disease, a rare Mitochondrial Disease.  It was such a relief to have a diagnosis but the worst news was still to come.  There is currently no treatment, or cure, for Mitochondrial Disease.   All that could be done was to keep her pain-free, comfortable, happy and safe.  We spent every minute by her side and she knew how much she was loved.  Anna died on 1 April 2012, just 2 weeks after her diagnosis and only 10.5 weeks since the whole nightmare had begun.

 
Anna received wonderful, loving care in her last few weeks of life at Great Ormond Street Hospital, for which we will always be so grateful. The entire team at GOSH made what was such a difficult time for Anna, and us, much easier to bear, and we owe them so much.  The medical care she received was second to none but it was the love that we all received that made the hospital stand out so much for us.  We will never forget that kindness.

The Mitochondrial Research Group at GOSH is working to identify the genetic causes for Mitochondrial Disease and to identify possible treatments. Without its expertise, Anna's diagnosis would never have been possible. We have asked for all donations to Anna's Brighter Future Fund to go to the Mitochondrial Research Group so that in the future there may be treatments or even a cure available for this most cruel of diseases.  So that other families will have a brighter future.

Our fundraising target was raised to £250,000 (from our original goal of £85,000) and so far we have raised over £290,000!  This page only shows some of our fundraising.  Please visit http://www.justgiving.com/remember/26325/Anna-Lewis to see what others have done to raise money!  We don't have an upper target any more, we will just keep going until there is a cure.

If you would like to make a donation in Anna's memory, please click on the Donate button and, if you're a tax payer, please consider adding Gift Aid to your donation. 

Thank you so much.

Jess, David and Holly Lewis and of course always remembering Anna xxxx

Photos

10
  • Anna enjoying life in Mauritius
  • Anna in her christening gown +8

Supporters

558