Our story

Almost 2 years ago I had the dreaded phone call to confirm my suspicions were correct that my eldest son was diagnosed with frontal lobe epilepsy. Everything in the following weeks went by in a blur with an MRI (which he bossed), appointments to trialing different medication, Charlie’s epilepsy nurse and doctor have been on the other end of the phone all the steps of the way. We’re still on the road of getting the right dose and medication fir him (it’s been a bumpy road) but there’s light at the end of the tunnel and with just a small donation it could help other children get the help and support we have been given.