Story
Thanks for taking the time to visit our JustGiving page.
Shortly before his first birthday, our son Josh was diagnosed with Severe Haemophilia A. This marked the start of what will now be a lifetime of treatment and care including regular medication, blood tests and trips to hospital.
Haemophilia is a lifelong, inherited bleeding disorder in which one of the clotting proteins is either partly or completely missing. People with haemophilia take longer than normal for bleeding to stop and may have bleeding into joints without having had an injury.
People with bleeding disorders are often discouraged or excluded from taking part in sport, especially as children. This comes from a lack of understanding or miseducation around bleeding disorders.
Sports Day is about getting off the sidelines and getting involved. It’s also whatever you want it to be. Whether it’s doing something you love or trying something you love, the important thing is you’re up and moving.
About us
The Haemophilia Society is the only UK-wide charity for everyone with a bleeding disorder.
One in 2,000 people in the UK have a diagnosed bleeding disorder. Through information, events and advocacy, we work to empower them to manage their condition effectively - with access to the best possible treatment and a true community to support them.
