The Lily Foundation was founded in Lily's memory, having lost her battle to Mitochondrial Disease at just eight months old. The charity aims to give hope, answers and support to the many other children and families that face the challenges of this disease today.Did you know every twenty minutes a child is born who will develop Mitochondrial Disease by the age of 16! There is no cure for this disease which is for many, debilitating and life limiting.Please stand with us and fight Mitochondrial Disease and fight for hope

In 2009 our son Jake was born, as far as we knew he was perfectly healthy and our perfect little boy had arrived. Little did we know that on 25th July 2013 Jake would be diagnosed with Mitochondrial Disease following a couple of years of blood tests, CT scan, MRI scan and a lumbar puncture. We had never heard of Mitochondrial Disease so as you do we 'googled' it and we were terrified. In the following January we had the diagnosis of Leigh's Syndrome which comes under the Mitochondrial Disease umbrella. We were then told that my wife should be tested, so Steph then had blood tests and was diagnosed with NARP and Jakes diagnosis was changed to Maternally Inherited Leigh's Syndrome

It was a devestating time as we just didn't know what laid ahead for us. We still don't know what lays ahead but we cherish our family time and we make as many amazing memories as we can

To celebrate the 10th year of the Lily Foundation I am taking on the challenge of completing the London vitality 10k race. This is the first race I have ever done and it is a scary prospect, this is an amazing cause that I am doing it for so please dig deep and support me which in turn supports the Lily foundation