As the majority of you are aware our darling Matthew very sadly passed away aged just 7 in November 2009 from Late Infantile Battens Disease. 

We promised Matthew that we would always in his memory keep raising money and keep up the awareness of this incredibly rare disease until a cure is found to stop other families from having to go through what sadly we have.

Matthew is missed so very much, our little blue eyed boy. He was unique, cheeky and a bundle of trouble. For those who were privileged to know him will get me when I say they will never forget our very special little boy.

Love you Matsie, Round & Round, Moon & Back, forever in my heart xxxxxx

Much Love to you all

Mel x

For more information on Battens Disease click on http://www.bdfa-uk.org.uk/

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