About NCBRS Worldwide Foundation
To create a global community where families, healthcare professionals and researchers work together to ensure that every person diagnosed with Nicolaides-Baraitser Syndrome has every opportunity to reach their full potential.
The NCBRS Worldwide Foundation is a nonprofit organisation that aims to support and educate families, carers and professionals who work with them. Together we will work to promote awareness and understanding of the syndrome. We will advocate for scientific research that increases the medical knowledge of Nicolaides-Baraitser Syndrome and best treatments.
NCBRS Worldwide Foundation Registered charity number 1190194