On October the 26th, Myself and Neil are taking part in a 10km halloween walk around London.

We are raising money for the Mikaere Foundation who support research into NKH research.

We are joining Mikaeres (kais) family to do the walk on the month of his birthday, in memory of their gorgeous, brave boy, who recently passed away.

Our daughter, Eleni, passed away in April 2023 due to NKH and we miss her more and more every single day.

The mikaere foundation has brought on NKH research leaps and bounds. And hopefully in the near future, treatments will be approved for clinical trials so that no one has to lose a child to NKH ever again.