Thanks for taking the time to visit my JustGiving page.

My beautiful son Teo was born with. Rare genetic condition NKH an incurable life limiting metabolic condition. We are raising money towards gene therapy research which will save his life and other children born with NKH. This particular walk is incredibly close to our hearts. We are walking besides our dear friend Elly who is the founder of The Mikaere Foindation. Elly precious son Kai was also born with NKH and sadly Kai passed away in August. Kai is our hero and a true inspiration and his legacy lives on. Kai’s birthday is in October and we are doing this walk for him. Please consider a donation to show Kai and his family that he will never be forgotten and in honour of Kai’s 7 brave years kicking NKH butt. We love you Kai xxx