Vicky Burley

Vicky, Simon, Claire and Tanya’s fundraiser for Shwachman-Diamond Syndrome UK - Running for Rexford

Fundraising for SDSUK
£5,385
raised of £5,000 target
by 113 supporters
Donations cannot currently be made to this page
Royal Parks Half marathon and Southampton Marathon , 7 April 2024
SDSUK

Verified by JustGiving

RCN 1164269
We raise funds to commission research and support families

Story

Thanks for taking the time to visit our JustGiving page.

So, we’re doing Southampton Marathon, as well as a few other runs and events along the way!

I wasn’t sure I had another marathon in me but I want to raise money for a very good cause and the others have agreed to join me

One of our best friends’ baby boy, Rexford, has been diagnosed with Shwachman–Diamond syndrome

Shwachman-Diamond syndrome (SDS) is a rare, inherited bone marrow failure, characterized by a low number of white blood cells, poor growth due to difficulty absorbing food, and, in some cases, skeletal abnormalities.

(There’s a lot more to it, this is just simplified)

There’s not a lot we can do but thought that by doing this, we can raise money for a charity that helps families with this diagnosis as well as research into the condition

The full list of things we will be doing between us to raise money for this great charity is….

29th July - 80’s night with raffle ✔️

1st Oct - quiz night ✔️

8th October - Royal Parks Half Marathon ✔️

15th October - Great South Run ✔️

25th February - quiz night

7th April - the big one, Southampton Marathon

There will probably also be a few other smaller fundraisers too

Keep your eyes peeled and please help us raise as much as we can for this small but very needed charity

Thankyou, from all of us x

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About the charity

SDSUK

Verified by JustGiving

RCN 1164269
Provide access to health and educational services and resources. Forums to support our community. Develop an adult clinic with transition from paediatric to adult care. Research into the pathophysiology of SDS & treatments. A dedicated UK Patient Registry & fundraising to meet charity objectives.

Donation summary

Total raised
£5,384.50
+ £320.75 Gift Aid
Online donations
£5,384.50
Offline donations
£0.00

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