brAMYacs - blowing raspberries to Cavernomas

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Raising money for Cavernoma Alliance UK

London 2 Brighton Ultra Challenge 2023 · 27 May 2023 to 28 May 2023 ·

Cavernoma Alliance UK (CAUK) supports people affected by cavernoma. A cavernoma is a common but often unheard of condition caused by a cluster of abnormal blood vessels in the brain or spine. Our mission is to improve the quality of life for those affected through education, support and research.

Story

We are walking for Cavernoma Alliance UK, a very small charity set up to support and help those with this rare disease. A Cavernoma is a cluster of abnormal blood vessels in the brain. Often, a person can have one and never know it, but on rare occasions they bleed, causing strokes or seizures.

Amy had a Cavernoma, discovered in 2020, and on 15 February, she had an operation to remove it. She is lucky in that the Cavernoma was operable. Some are not, and some people can have multiple Cavernomas.

It's a frightening time when first diagnosed, and the Cavernoma Alliance UK are a wonderful support for the Cavernoma community. Please give whatever you can to support this incredibly important charity.

You can follow Rebecca's blog at: https://bramyacs.blogspot.com/

With very many thanks.

brAMYacs

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Donation summary

Total
£21,054.18
+ £3,443.38 Gift Aid
Online
£20,841.68

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