Research can change the story for people with aplastic anaemia.

In December 2024, the news came out that a clinical trial we’re funding is showing promising results with a brand new treatment for AA.

This year, we’ll be publishing a paper setting out the current priorities for clinical research in aplastic anaemia. Those priorities will require us to raise more money for research than we have ever raised before.

We know that research can improve the way AA is treated, not just for future patients “some day” far off – but right now. In recent years, research has told us how people with AA respond to the Covid vaccine, and demonstrated the benefits of eltrombopag alongside standard immunosuppressants, and now we’re trialling brand new treatments!

If we don’t fund and enable research into aplastic anaemia – no-one will.

We are the people who have AA, or love someone who does. We know the side effects, the limitations and the long term impacts of treatment. Some of us have faced the devastating loss of a loved one. We all know how important this is.

That’s why we are relying on our community to get out there and fundraise this year – our 40th birthday year – for the future of AA research.

For the next 40 years, but also for tomorrow. Because research can create change faster than you might expect.

Join in, raise £200, and wear your t-shirt with pride.

Super Rare is our opportunity to step up, reach out and connect with each other. We’ll be organising various walks and events and we would love to see some of you there! Whether you’re living with aplastic anaemia, or fundraising for one of the other rare conditions joining the campaign this year, it’s a wonderful opportunity to meet each other and share our experiences. In 2025 The Aplastic Anaemia Trust is celebrating our 40th Anniversary.

Join in with Super Rare our annual fundraising campaign and celebrate Rare Disease Day (28th February) and Aplastic Anaemia Awareness Day (4th March).

Visit Super-rare.org to request a fundraising pack and learn more.