Our Ivy was born at the same time as Lily in 2006, sadly Lily lost her fight at just eight months old. Ivy bravely soldiers on, but she still is not able to sit up on her own, walk, talk or swollen food safely! And we live one day at a time and do all we can to make her life as full as possible.

Mitochondrial disease is a cruel, incurable, life limiting disease that many children in the uk suffer with. It is probably the most common, disease you have previously never heard of. And 12 years ago there was no information or any network supporting familys like ours and Lilys.

The Lily Foundation was born to change this and to strive to one day find a cure.

Thank you for supporting our Team Ivy and the Lily Foundation