Charlie was diagnosed with Leigh's Syndrome earlier this year. Leigh's Syndrome is a mitochondrial disease which affects Charlie enormously on a daily basis; it is debilitating, degenerative and life limiting. There is no cure for mitochondrial disease, only HOPE of a cure. We are fundraising now and will continue to do so for that hope. Mitochondrial disease changed our world forever. We will never be the same. Let's fundraise and fight together to end the pain that hundreds of children and families face.      The Lily Foundation are fighting this fight for hundreds of families. Everyday a child is born who will suffer from mitochondrial disease. The Lily Foundation offer invaluable support to families from the very beginnings of diagnosis, in fact their research has already improved the genetic diagnosis process for families, they help families understand what has been going so wrong, helping them to have the information to move forwards with their lives. They provide research, diagnosis, funding towards equipment, offer family weekend breaks, support weekends,  the list and support is endless and is all made possible by you. You reading this or donating to this page or taking part in a sponsored activity. You provide The Lily Foundation with the means to keep fighting mitochondrial disease, to keep fighting for hope and to support families. We are all so grateful.