Weʼre raising £2,000 to To buy innovative, Eye Gaze, communication technology tools for people living with Huntingtons's Disease and unable to communicate.
- Wainscott, Rochester, UK
Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.
The page owner is responsible for the distribution of funds raised.
Ok, here I go...
I am trying to raise as much money as possible in an attempt raise enough funds to purchase amazing Eyegaze communication tools. I am wanting to purchase these to give individuals who live with Huntington's Disease, back their independance and the ability to make their own choices, preferences and ideas known.
I will be booking a skydive as soon as the enough funds for a charity jump have been raised. I hope to book this for the month of august with a view to getting as many sponsors as possible in the meantime.
I am also walking 1000 miles this year and will be doing a two day fasting every month in addition to the skydive. Let's say it is a triathlon of events. :)
Each piece of equipment costs at least £1000. It is an expensive tool but you can't put a price on being able to communicate when all other options are no longer viable...
Huntington's Disease is really very cruel hereditary disease. It slowly robs you of your abilities to walk, talk, eat, drink and eventually to mentally process things properly for yourself. It is a terminal disease which will ultimately lead to the death of an individual...
These tools can be an effective gateway to enable a form of independence and most certainly to retain dignity and promote person centred values and continuity in care for said individuals.
These tools can literally make such a difference to a persons life, where instead of being confined to their own head and thoughts due to being unable to communicate in any way, they can literally just look at the screens of these computers to tell us (the care team,friends and family) what it is that they're needing or wanting.
Please help me to bring joy and happiness to people's lives by donating as much or as little as you possibly can.
Each and every penny will make a difference.
Please feel free to ask for anymore details.
Share this story
Updates appear here
Lillie Harvey started crowdfunding
Leave a message of support
Apr 16, 2018
Such a great cause so close to my heart go on Lillie you can smash it from me and my family x
Mar 29, 2018
A worthy cause. Go for it Lillie 👊🏻 Xxxxxx
Mar 29, 2018
Good luck x
Feb 28, 2018
Good luck sweetheart, xxx
Become a supporter
Help Lillie Harvey raise more
Crowdfunding stories like this
About the fundraiser
Wainscott, Rochester, UK
I am a senior support worker for people with Huntington's Disease and aquired brain injuries. I would love to be able to give these people a tool to be able to communicate their wants & needs. It's a heartbreaking disease to see & this could enrich their lives so much.
* JustGiving crowdfunders pay a small fee for our service. Find out how much it is and what we do for it.