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£135raised of £1,000 target by 8 supporters

Weʼre raising £1,000 to To help cover medical costs for our real life Wonder.

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Story

Zulé's story follows below... the family need to raise R81800 (just over £4500, £1 = R17.51)... Recently I watched "Wonder" based on R.J Palacio's children's novel . The story gave me some kind of insight into the emotional challenges Zule will face, and her sweet, older brother Jayden. I would love us to give her family every advantage to face these challenges nobley, without the crude reality of money overbearing the tender feelings they need to nurture going forward.

Zulé is 3 years old. September 2017, she had been diagnosed with marble bone disease (sclerosteosis) a very rare autosomal recessive genetic disorder. Clinical features include, uncontrollable bone formation that leads to thickening and hardening of the skeleton incl. the scull, resulting in distortion of the face, gigantism and entrapment of the cranial/spinal nerves with consequential recurring facial paralysis, hearing loss etc. The most dangerous feature is raised cranial pressure that can lead to sudden death due to impaction of the brain stem. Zulé had 2 major brain surgeries Oct'17, Feb'18 none without complications - CSF leak (brain fluid), meningitis, gangrene etc. Spent almost 30hrs in theatre thus far and long hospital stays. She has 2 more upcoming surgeries, we will then also hear if she needs hearing aids as her hearing did decrease and speech therapy. By the end of this year we will know if she needs to have the scull surgery (they take of the scull to thin it out) so that there is no pressure on her brain. She needs these surgeries to live a 'normal' life, as she loses facial expression and movement with each paralysis (20-25% each time) she had 2 on the right and 3 on the left side already. We still have a lot of Co-payments outstanding at the moment ±R81800. Please if you can in any way possibly pray or contribute does not matter how little or big, it will be highly appreciated!!!!

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Davin Woynowska

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    2 months ago

    Davin Woynowska started crowdfunding

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    Page last updated on: 6/14/2018 2:03 PM

    Supporters

    8

    • JP

      JP

      Jun 14, 2018

      What a wonderful young lady.

      £10.00

    • Rowan Puttergill

      Rowan Puttergill

      Jun 11, 2018

      I hope you reach your target to help Zule. Wishing her family all the best.

      £20.00

    • Anonymous

      Anonymous

      Jun 11, 2018

      A good thing that you are doing. Hope you have lots of support for this family who must all be feeling very sad and who will be glad to know people care. Every little helps

      £5.00

    • Barbara & Cezar Redeker

      Barbara & Cezar Redeker

      Jun 9, 2018

      Thanks for setting this up Davin - so glad to be able to help precious Zule x

      £50.00

    • Anonymous

      Anonymous

      Jun 9, 2018

      £10.00

    • Anonymous

      Anonymous

      Jun 9, 2018

    • Anonymous

      Anonymous

      Jun 9, 2018

      £20.00

    Davin Woynowska

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    About the fundraiser
    Davin Woynowska

    Davin Woynowska

    London, UK

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