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Closed 21/04/2018

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£2,991raised of £15,000 target by 100 supporters

    Weʼve raised £2,991 to Help with this rare cancer journey for treatment, travel costs and anything else he needs.

    Milton Keynes, United Kingdom
    Funded on Saturday, 21st April 2018

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    Story

    My 6 year old grandson has been diagnosed with a rare form of cancer. This is the name of it RHABDOMYOSARCOMA.

    One Friday 2 weeks before christmas he woke up screaming in pain he was taken to the doctor then sent to hospital. As far as we were concerned he had tummy ache. He was then transferred from Milton Keynes to Oxford on Saturday by Monday he was diagnosed with cancer. Devasted,heartbroken, i cant explain how anyone felt. You cannot put it into words. Our happy little ray of light was so poorly and no one knew. He never complained about anything and all of a sudden he has this. Even to this day it breaks our hearts knowing what he will be going through.

    The first thing they had to do was stabilise his kidneys as the tumor was squashing his eurethra which was pushing all the toxins back in. What he was drinking was not coming out. His tummy was starting to swell and due to this it was also squashing his bladder. He had his first operation to insert a catheter hoping his kidneys would start draining.They took biopsies and also did a CT scan and they have also inserted hicman lines so that all his meds go directly into him rather than having cannulas to feed them. He has one in his main artery in his neck, two on his right side near his rib cage for drainage and if they need to give any directly to the site.

    The catheter didnt work and then three days later he underwent another operation to put stents in so that his kidneys could drain, removing the catheter and hoping this would work, we were told that he needed both kidneys to work as he is to young for dialysis.

    Finally his kidneys started to drain and then a plan was put into place. They still had no idea what the name of this cancer was.

    Nearly two weeks after his biopsy was taken we got the results and then to be told its a rare form that only affects up to 7% of children globally was another crushing blow. The name of it is Rhabdomyo Sarcoma

    Its found in the muscles or soft tissue,neck or brain and mainly in boys under the age of 10. We know his tumor is growing from his stomach muscle. The mass is too large for it to be removed. The only way it can be removed is to shrink it with evasive chemotherapy. This could take up to 34 weeks. He is having a 3 week cycle of chemo.

    Week one he has 3 days of chemo

    Week two he has 1 chemo

    Week three he has 1 chemo

    then the cycle starts again. He is also on anti sickness medication, medication to stop his bladder from bleeding as well as other medication. The chemo drugs he has are so toxic that we are not allowed to touch his saliva,urine and tears.

    This treatment cycle will be going on for 34 weeks, their lives are going to be endless rounds of hospital appointments, doctors,nurses as well as another child to look after.

    At this moment in time they are concentrating on their little boy getting better. For this they do not need the worry about finances.

    This year my daughter was diagnosed with a blood clot on her lung, whilst they were diagnosing this they took an xray and missed the shadowing on her lungs and two months later ended up extremley ill with pneumonia and then pleuresy. As soon as she started getting back on her feet her partner was laid off from his job along with others, then my grandson was diagnosed with this cruel blow.How can so much happen to them in such a short amount of time.

    When they diagnosed him my daughter cried and cried and i‘ve never heard her cry like this in all her 25 years. As a mother of a mother who has such a sick child you feel useless, as a parent you can fix everything but this is something you cant fix and you feel gulity. Its the hardest position to be in so i thought there must be something I can do to ease some of the pressure. So I am asking for your help no matter how little to try and ease the financial stresses of their journey so they can concentrate on getting our little light well and home.

    We never thought we would be here, its still a shock somehow day by day we are going to get through this as a family.

    We love this little boy he really is the light of our lives. We want him better and being the star he always has been. He loves everyone, everyone loves him and our dog is his best friend. He is always smiling,giggling,playing. He is football mad, his favourite team is LTFC and he loves his nanny’s butter chicken. He loves school, he is just a nomal boy who turned 6 only 3 months ago. Life is so unfair and cruel but you learn to live with what you are given and pray as well as have faith. Yes we have been angry, we are still up and down. We are remaining optimistic and positive and cant wait to have cuddles and sleepovers like we used to.

    At the end of his treatment we would like to send him for a well deserved memorable holiday so they can have time as a family. All this money WILL be for Luca and his needs.

    There will be much more fundraising going on through his treatment.

    Thank you for taking the time to read this and it would be extremely appreciated if you could share this page via messenger or email to your friends and families.

    Updates

    7

    • Ravina Kaur4 months ago
      Ravina Kaur

      Ravina Kaur

      4 months ago

      Luca update His tumour hasn’t grown but it hasn’t shrunk, it’s still the same size as it was. They are going to give him two more cycles of chemo and then a CT scan. Poor kid he hates it... Last night he said to me “Nanny I’m 6 and I know I have cancer and trust me you don’t want cancer because it’s horrible and nasty, when you give me reiki it feels nice. I get pins and needles in my legs and feet and it helps to relax me. I can feel the chemo, I can feel when it’s growing..” He sat there smiling like he always does. Love him ❤️

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    • Ravina Kaur4 months ago
      Ravina Kaur

      Ravina Kaur

      4 months ago

      Little star is going for a blood transfusion today, he’s been having injections in his leg to keep his bloods up, but his oncologist has asked for a blood transfusion. Some new blood will do him the power of good, just hope he doesn’t have a reaction like the last time. Love this boy so much, it’s just not fair.

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    • Ravina Kaur4 months ago
      Ravina Kaur

      Ravina Kaur

      4 months ago

      As many of you are aware the first chemo didn’t work and the tumour grew, the oncologist has started him on a new one which is highly toxic. Instead of him having weekly chemo sessions and staying in hospital for 4 days at the start of every new cycle they have reduced it to once every three weeks. The oncologist is now going to see in 3 weeks after a CT scan to see if this one is working. We will wait and see, we had our hopes crushed the last time. We won’t be getting our hopes up..

      Share this update to help us raise more

    7 months ago

    Ravina Kaur started crowdfunding

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    Page last updated on: 3/30/2018 10:13 AM

    Supporters

    100

    • Vicki Bateman

      Vicki Bateman

      Mar 28, 2018

      💗

      £10.00

    • Miss Quinn

      Miss Quinn

      Mar 27, 2018

      Positive vibes and massive love to u and ur family right now xx

      £20.00

    • Nicola Jones

      Nicola Jones

      Mar 27, 2018

      Good luck with the treatment lovely 😘

      £5.00

    • Niraj Kapur

      Niraj Kapur

      Mar 18, 2018

      lots of love to your grandson.

      £31.00

    • Brigit Daniels

      Brigit Daniels

      Mar 16, 2018

      It's only little, but I hope it helps. Thinking of you. X

      £15.00

    • Bina Briggs

      Bina Briggs

      Mar 15, 2018

      Hang on in there. X

      £50.00

    • Anonymous

      Anonymous

      Mar 10, 2018

      £20.00

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    About Crowdfunding
    About the fundraiser
    Ravina Kaur

    Ravina Kaur

    Milton Keynes, United Kingdom

    This is my story about my amazing 6 year old grandson who had been diagnosed with a rare form of cancer. We are devastated and totally heartbroken. When a child is this ill it puts things into perspective. It also shows what people are like and what they will do.

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