Thanks for visiting our team fundraising page.
After the death of their son Jacob at just 16 months old from a Mitochondrial Disease called Leigh’s in 2012, Claire and Bob Wright decided they wanted to give something back to the charities that helped them most. So together with their amazing family and friends they formed the fundraising group Team Jacum. It is Jacum rather than Jacob because when he was born his cousin Hallie could not say Jacob and always called him “Baby Jacum”.
Although Jacob only lived for 501 precious days his legacy will always be one of positivity and hope. His main charities are:
The Lily Foundation who are fighting to find a cure for Mitochondrial Disease and support families living with this cruel condition– www.thelilyfoundation.org.uk
East Anglia’s Children’s Hospice – Who provide care to children and their families with life limiting and life threatening condition from diagnosis to the end of life and beyond - www.each.org.uk
Brainwave who provide therapy for children with conditions that effect development and believe every child should reach their potential – www.brainwave.org.uk
The Sick Children’s Trust who provide home from home accommodation throughout the UK for families whose children are very sick and in hospital meaning they can stay together when they need to the most - www.sickchildrenstrust.org
Please join Team Jacum and take on a chalange or organise a cake sale, tombola or any event that can support these amazing charities that support children and families like Jacob’s when they need it most. Help us keep his beautiful memory alive – Thank You – Claire, Bob and Jacob x
Here is Jacob's story.
Jacob was born on 6th December 2010. He had health complications from a young age including a cataract in his left eye and hearing loss from eight weeks old. When Jacob was eight months old he had a seizure. They increased in frequency, sometimes having 16 a day, and doctors were unable to control them with medication.
In February 2012 Jacob had an MRI scan which showed he had lesions in his brain and was diagnosed with Leigh’s Disease; a condition which affects the energy sources of the brain cells which control motor movements and breathing.
The condition progressed quickly and Jacob’s health deteriorated. Two months later Jacob died peacefully in his mum’s arms with his dad holding his hand on the 20th April 2012.
Team Jacum is determined to ensure Jacobs legacy is one of positivity, hope and love and that the super gorgeous Jacob Bear is never forgotten.
Remember: Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never share them with anyone or send you unwanted emails. Once you donate, they'll send your money directly to the charity. They'll make sure Gift Aid (an additional 28%) is reclaimed on every eligible donation by a UK taxpayer, too. That means more money goes to the charity, faster, with JustGiving.
So please dig deep and donate now.
