We lost our daughter Rowan to Spinal Muscular Atrophy (SMA) type 1b on the 23rd November 2012 at just 18 months old.
Rowan delighted everyone she met and enjoyed her short life to the full. She made the world more fun, more interesting, more beautiful and above all, more joyful for everyone close to her.
You can read more of Rowans story at
www.teamrowan.moonfruit.com also find us on facebook and twitter:
www.facebook.com/fundraisingforteamrowan
@teamrowan_sma
The suport we have seen with our fundraising since 2013 has been amamzing. Just looking at our orignial target of £10k and what we have actually raised means so much to us!
Every penny raised has helped us and the SMA trust support research projects to help find a cure and treatments for the number one genetic killer of children under 2.
The SMA Trust is dedicated to finding a cure for SMA. So please dig deep and donate now.
Thank you.
Sarah and Matt Poole
