Story
I am going to be taking part in a 5K fun run on 24th August , We are doing for the charity 'Make a wish' However we now have a wonderful little girl we will be raising the donations in aid of to get her trip to DISNEY WORLD.
The little girl Grace we are doing this for her mum contacted me and it has given me so much inspiration to help!
Who is Grace?
Grace is a little girl who turned 3 years old in December 2012, Making her third birthday was a massive milestone as doctors didn’t expect her to live beyond her 1st birthday!!
Grace has a rare metabolic condition called Pyruvate Dehydrogenase Deficiency. (PDH Deficiency)
It is a rare, complex, life limiting illness that affects the brain and the metabolism of the body. The cells in Grace’s body have a malfunction which means they do not recharge as they should and are not forming in the correct way. This means her cells are missing what they need to make her body stay healthy and keep working.
Her condition has caused limited sight and lack of hearing, severe developmental delay, brain damage and poor muscle tone.
Any donation, large or small, is very much appreciated and will go towards items large and small that can benefit or enhance Grace’s life.
PLEASE HELP US TO RAISE AWARENESS AND GET ALL THE DONATIONS WE CAN!!